Archives of Psychiatric Nursing
Volume 23, Issue 2 , Pages 128-137 , April 2009

Factors Affecting the Sense of Burden Felt by Family Members Caring for Patients With Mental Illness

  • Narumi Fujino
    • ,
  • Hitoshi Okamura

      Affiliations

    • Corresponding Author InformationCorresponding Author: Hitoshi Okamura, MD, PhD, MD, Professor, Graduate School of Health Sciences, Hiroshima University, 1-2-3 Kasumi, Minami-ku, Hiroshima 734-8551, Japan.

References 

  1. Anders RL, Kawano M, Mori C, Kokusho H, Iguchi S, Yoshida S. Characteristics of long-term psychiatric patients hospitalized in Tokyo, Japan. Archives of Psychiatric Nursing. 1997;11:139–146
  2. Anders RL, Kawano M, Mori C, Kokusho H, Tomai J. Cross-cultural comparison of long-term psychiatric patients hospitalized in Tokyo, Japan and Honolulu, Hawaii. Nursing & Health Sciences. 1999;1(1):35–44
  3. Anderson KH, Tomlinson PS. The family health system as an emerging paradigmatic view for nursing. Image: Journal of Nursing Scholarship. 1992;24:57–63
  4. Arai Y, Kudo K, Hosokawa T, Washio M, Miura H, Hisamichi M. Reliability and validity of the Japanese version of the Zarit Caregiver Burden Interview. Psychiatry and Clinical Neuroscience. 1997;51:281–287
  5. Berglund N, Vahlne JO, Edman A. Family intervention in schizophrenia—burden and attitude. Soc Psychiatry Psychiat Epidemiol. 2003;38:116–121
  6. Bertalanffy L. Problems of life: An evaluation of modern biological thought. London: John Wiley & Sons Ltd; 1952;
  7. Bowen M. Family therapy in clinical practice. Amsterdam: Jason Aronson; 1994;
  8. Dickerson FB. Subjective quality of life in outpatients with schizophrenia, clinical and utilization correlate. Acta Psychiatrica Scandinavica. 1998;98:124–127
  9. Fitzgerald PB, de Castella AR, Filia K, Collins J, Brewer K, Williams CL, et al. A longitudinal study of patient- and observer-rated quality of life in schizophrenia. Psychiatry Research. 2003;119:55–62
  10. Inadomi H, Tanaka G, Watanabe S, Nagatomi Y, Mitarai K, Ohsawa R. Efficacy of 3-year psychiatric daycare treatment in patients with schizophrenia. Psychiatry and Clinical Neurosciences. 2005;59:246–252
  11. Iwanami A, Yamashina M, Kazamatsuri H, Kamijima K. P300 and disability of daily life in schizophrenia. Progress in Neuro-Psychopharmacology and Biological Psychiatry. 1999;23:423–430
  12. Iwasaki S, Miyauchi M, Ohshima I. Development of Life Assessment Scale for the Mentally Ill: An assessment of the reliability (Japanese). Archives of Psychiatric Diagnostics and Clinical Evaluation. 1994;5:221–231
  13. Jungbauer J, Mory C, Angermeyer MC. Financial burden on caregivers of schizophrenic patients: A comparison between parents and spouses (German). Psychiatrische Praxi. 2002;29:181–186
  14. Kadoya K. Evaluation of the QOL of mentally ill patients: Development of the scale to determine satisfaction with daily life (Japanese). Journal of Kyoto Prefectural University of Medicine. 1995;104:1413–1424
  15. Katschnig H, Freeman H, Sartorius N. Quality of life in mental disorders. London: John Wiley & Sons Ltd; 1999;
  16. Kohn-Wood LP, Wilson MN. The context of caretaking in rural areas: Family factors influencing the level of functioning of seriously mentally ill patients living at home. American Journal of Community Psychology. 2005;36:1–13
  17. Kramer BJ. Gain in the caregiving experience: where are we? What next?. Gerontologist. 1997;37:218–232
  18. Kuipers L. Family burden in schizophrenia, implications for service. Social Psychiatry and Psychiatric Epidemiology. 1993;28:207–210
  19. Lawton MP, Moss M, Kleban M, Glicksman A, Rovine M. A two-factor model of caregiving appraisal and psychological well-being. Journal of Gerontology. 1991;46:181–189
  20. Magliano L, Fiorillo A, Malangone C, De Rosa C, Maj M. Patient functioning and family burden in a controlled, real-world trial of family psychoeducation for schizophrenia. Psychiatric Services. 2006;57:1784–1791
  21. Magliano L, Fadden G, Madianos M, de Almeida JM, Held T, Guarneri M, et al. Burden on the families of patients with schizophrenia: results of the BIOMED I study. Social Psychiatry and Psychiatric Epidemiology. 1998;33:405–412
  22. Ostman M, Wallsten T, Kjellin L. Family burden and relatives' participation in psychiatric care: Are the patient's diagnosis and the relation to the patient of importance?. International Journal of Social Psychiatry. 2005;51:291–301
  23. Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: An overview of concepts and their measures. Gerontologist. 1990;30:583–594
  24. Pinkham AE, Penn DL, Perkins DO, Lieberman J. Implications for the neural basis of social cognition for the study of schizophrenia. American Journal of Psychiatry. 2003;160:815–824
  25. Rose LE, Mallinson RK, Gerson LD. Mastery, burden, and areas of concern among family caregivers of mentally ill persons. Archives of Psychiatric Nursing. 2006;20:41–51
  26. Sakai Y, Kim Y, Akiyama T, Kurita H. Burden on the families of patients with schizophrenia: Relations to patients' and families' awareness of mental disorder (Japanese). Seishin Igaku. 2002;44:1087–1094
  27. Saunders JC. Families living with severe mental illness: A literature review. Issues in Mental Health Nursing. 2003;24:175–198
  28. Schmid R, Spiessl H, Cording C. Between responsibility and delimitation: Emotional distress of caregivers. Psychiatrische Praxisis. 2005;32:272–280
  29. Schmid R, Spiessl H, Vukovich A, Cording C. Burden of relatives and their expectations towards psychiatric institutions. A review of the literature and own results. Fortschritte der Neurologie-Psychiatrie. 2003;71:118–128
  30. Stengård E. Caregiving types and psychosocial well-being of caregivers of people with mental illness in Finland. Psychiatric Rehabilitation Journal. 2002;26:154–164
  31. Tsang HW, Tam PK, Chan F, Cheung WM. Sources of burdens on families of individuals with mental illness. International Journal of Rehabilitation Research. 2003;26:249
  32. Wang SH, Rong JR, Chen CC, Wei SJ, Liu KC. A study of stress, learned resourcefulness and caregiver burden among primary caregivers of schizophrenic adolescents. Hu Li Za Zhi. 2007;54:37–47
  33. Wilkinson G, Hesdon B, Wild D, Cookson R, Farina C, Sharma V, et al. Self-report quality of life measure of people with schizophrenia, the SQLS. British Journal of Psychiatry. 2000;177:42–46
  34. Wilms HU, Mory C, Angermeyer MC. Illness related costs for spouses of patients suffering from a mental illness: Results of a study with repeated measurements. Psychiatrische Praxis. 2004;31:177–183
  35. Wittmund B, Nause B, Angermeyer MC. Everyday burden of mentally ill people's spouses—client orientated approaches in relatives' support. Psychiatrische Praxis. 2005;32:233–238
  36. Wittmund B, Wilms HU, Mory C, Angermeyer MC. Depressive disorders in spouses of mentally ill patients. Social Psychiatry and Psychiatric Epidemiology. 2002;37:177–182
  37. Yamaguchi H, Takahashi A, Takano A, Kojima T. Direct effects of short-term psychoeducational intervention for relatives of patients with schizophrenia in Japan. Psychiatry and Clinical Neuroscencesi. 2006;60:590–597
  38. Yamamoto N, Ishigaki K, Kuniyoshi M. Impact of the positive appraisal of care on quality of life, purpose in life, and will to continue care among Japanese family caregivers of older adults: Analysis by kinship type. Japanese Journal of Public Health. 2001;49:660–671
  39. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist. 1980;20:649–655
  40. Zarit SH, Todd PA, Zarit JM. Subjective burden of husbands and wives as caregivers: A longitudinal study. Gerontologist. 1986;26:260–266

PII: S0883-9417(08)00106-4

doi: 10.1016/j.apnu.2008.05.006

Archives of Psychiatric Nursing
Volume 23, Issue 2 , Pages 128-137 , April 2009

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