Archives of Psychiatric Nursing
Volume 24, Issue 5 , Pages 349-361 , October 2010

Facades of Suffering: Clients' Photo Stories About Mental Illness

  • Jan E. Sitvast

      Affiliations

    • GGNet, Network for Mental Healthcare in the Region Oost Gelderland, Warnsveld, The Netherlands
    • Corresponding Author InformationCorresponding Author: Jan E. Sitvast, MA, GGNet, Kenniscentrum, Mr. Jan Sitvast, Vordenseweg 12, 7230 GC Warnsveld, The Netherlands.
  • ,
  • Tineke A. Abma

      Affiliations

    • VU Medical Center, Amsterdam, Department of Medical Humanities, EMGO Institute, Amsterdam, The Netherlands
    • Address Dr. Abma and Dr. Widdershoven: EMGO InstituteVU University Medical Center, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands.
  • ,
  • Guy A.M. Widdershoven

      Affiliations

    • VU Medical Center, Amsterdam, Department of Medical Humanities, EMGO Institute, Amsterdam, The Netherlands
    • Address Dr. Abma and Dr. Widdershoven: EMGO InstituteVU University Medical Center, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands.

References 

  1. Abma TA. Storytelling as inquiry in a mental hospital. Qualitative Health Research. 1998;8(6):821–838
  2. Bach H. Composing a visual narrative inquiry. In:  Clandinin DJ editors. Handbook of narrative inquiry. Thousand Oaks: Sage Publication; 2007;
  3. Bouhuis A., Middelhoven C., Schoneveld T., & Sitvast, J. E., (2003). Fotografie als interventie. Een actieonderzoek in de psychiatrie, (a research report commissioned by Opleiding GGZ-Verpleegkundig Specialist in Utrecht). Utrecht (The Netherlands), unpublished.
  4. Brockmeier J. Autobiographical time. Narrative Inquiry. 2000;10(1):51–73
  5. Charmaz K. Good days, bad days. the self in chronic illness and time. New Brunswick: Rutgers University Press; 1991;
  6. Corrigan PW. The impact of stigma on severe mental illness. Cognitive and Behavioural Practice. 1998;5:201–222
  7. Corrigan PW, Watson AC. The paradox of self-stigma and mental illness. American Psychological Association. 2002;D12:35–53
  8. Emmison M, Smith P. Researching the visual. London: Sage Publications; 2000;
  9. Eriksson K. The suffering human being. Chicago: Nordic Studies Press; 2006;(translated from swedish by Olsson K.A. & Peterson C.I.; original title Den Lidande Människan)
  10. Fleming J, Mahoney J, Carlson E, Engebretson J. An etnographic approach to interpreting a mental illness photovoice exhibit. Archives of Psychiatric Nursing. 2009;23(1):16–24
  11. Frank AW. The wounded storyteller. Chicago: University of Chicago Press; 1995;
  12. Fredriksson L, Eriksson K. The patient's narrative of suffering: A path to health? An interpretative research synthesis on narrative understanding. Scand J Caring. 2001;15:3–11
  13. Fredriksson L, Lindström UA. Caring conversations—Psychiatric patients' narratives about suffering. Journal of Advanced Nursing. 2002;40(4):396–404
  14. Frith H, Harcourt D. Using photography to capture women's experiences of chemotherapy: Reflecting on the method. Qualitative Health Research. 2007;17(10):1340–1350
  15. Greene JC, Caracelli VJ. Making paradigmatic sense of mixed methods practice. In:  Tashakkori A,  Teddlie C editor. Handbook of mixed methods in social & behavioral research. Thousand Oaks: Sage Publications; 2003;
  16. Hagedorn MI. Photography: An aesthetic technique for nursing inquiry. Issues in Mental Health Nursing. 1996;17:517–527
  17. Hinshaw SP. The mark of shame. Stigma of mental illness and an agenda for change. New York: Oxford University Press; 2007;
  18. Josselson R. Narrative research and the challenge of accumulating knowledge. Narrative Inquiry. 2006;16:3–10
  19. Keller C, Fleury J, Perez A, Ainsworth B, Vaughan L. Using visual methods to uncover context. Qualitative Health Research. 2008;18(3):428–436
  20. In:  Leeuwen van T,  Jewitt C editor. Handbook of visual analysis. London: Sage Publications; 2001;
  21. Lieblich A, McAdams DP, Josselson R. Healing plots. The narrative basis of psychotherapy. Washington: American Psychological Association; 2004;
  22. Lincoln YS, Guba EG. Naturalistic inquiry. London: Sage Publications; 1985;
  23. Lindholm L, Eriksson K. To understand and alleviate suffering in a caring culture. Journal of Advanced Nursing. 1993;18:1354–1361
  24. Maxwell JA, Loomis DM. Mixed methods design: An alternative approach. In:  Tashakkori A,  Teddlie C editor. Handbook of mixed methods in social & behavioral research. Thousand Oaks: Sage Publications; 2003;
  25. Mertens D. The evaluator's role in the transformative context. In:  Ryan KE,  Schwandt TS editor. Exploring evaluator role and identity. Greenwich, CT: IAP; 2002;p. 103–118
  26. Nathanson DL. Shame and pride. Affect, sex, and the birth of the self. New York/London: Norton & Company; 1992;
  27. Onwuegbuzie AJ, Teddlie C. A framework for analyzing data in mixed methods research. In:  Tashakkori A,  Teddlie C editor. Handbook of mixed methods in social & behavioral research. Thousand Oaks: Sage Publications; 2003;
  28. Plummer K. Documents of life 2. An invitation to a critical humanism. London: Sage; 2001;
  29. Radley A, Taylor D. Images of recovery: A photo-elicitation study on the hospital ward. Qualitative Health Research. 2003;13(1):77–99
  30. Ricoeur P. Oneself as another. Chicago: The University of Chicago Press; 1992;(transl. from french by Blamey K. ; original title : Soimême, comme un autre)
  31. Riessman CK. Strategic uses of narrative in the presentation of self and illness: A research note. Soc. Sci. Med. 1990;30(11):1195–1200
  32. Riessman CK. Narrative methods for the human sciences. Thousand Oaks: Sage Publications; 2008;
  33. Sitvast JE, Abma TA, Widdershoven GAM. Photo stories, Ricoeur, and Experiences From Practice. A Hermeneutic Dialogue. Advances in Nursing Science. 2008;31(3):268–279
  34. Sitvast JE. Een narratief model voor de zieke mens (a narrative model for ill persons). Tijdschrift voor Ziekenverpleging (TvZ). 2009, May;119(5):24–27
  35. Strauss A, Corbin J. Basics of qualitative research: Techniques and procedures for developing grounded theory. Thousand Oaks, CA: Sage; 1998;
  36. Strauss JS. Subjective experiences of schizophrenia. In: Ts Schizophrenia Bulletin. Vol. 15:1989;p. 4
  37. Veer van 't JTB, Kraan HF, Drosseart SHC, Modde JM. Determinants that shape public attitudes towards the mentally ill. A Dutch public study. Soc Psychiatry Psychiatr Epidemiol. 2006;41:310–317
  38. Wang C, Burris MA. Photovoice: Concept, methodology, and use for participatory needs assessment.. Health Education & Behaviour. 1997;24(3):369–387
  39. Weiser J. Phototherapy techniques. Exploring the secrets of personal snapshots and family albums. San Francisco: Jossey-Bass Publishers; 1993;
  40. Wiklund L, Lindholm L, Lindström UA. Hermeneutics and narration: A way to deal with qualitative data. Nursing Inquiry. 2002;9(2):2–12
  41. Wiklund L, Lindström UA, Lindholm L. Suffering in addiction—A struggle with life. Theoria, Journal of Nursing Theory. 2006;15(2):7–16
  42. Williams G. The genesis of chronic illness: Narrative reconstruction. In:  Hinchman LP,  Hinchman SK editor. Memory, identity, community. The idea of narrative in the human sciences. Albany: State of New York Press; 2001;p. 185–211
  43. Wright EA, Gronfein WP, Owens TJ. Deinstitutionalization, social rejection, and the self-esteem of former mental patients. Journal of Health and Social Behavior. 2000;41:68–90

PII: S0883-9417(10)00020-8

doi: 10.1016/j.apnu.2010.02.004

Archives of Psychiatric Nursing
Volume 24, Issue 5 , Pages 349-361 , October 2010