Highlights
- •Diversity is missing in genetic studies aimed at preventing and treating psychiatric disorders.
- •Lack of engagement in research by diverse populations exacerbates mental health disparities.
- •Beliefs about participation in genetic research impact willingness to participate.
- •Marginalized sub-groups of mothers encounter barriers that intersect and impact participation.
- •Theoretically based inquiries can inform intervention strategies to enhance participation.
Abstract
Purpose
To identify mothers' salient normative, behavioral and control beliefs and willingness
towards participating in genetic salivary testing for depression.
Design
A qualitative, descriptive design was employed. 41 multi-ethnic mothers completed
surveys that underwent directed content analysis according to The Theory of Planned
Behavior. Percentages and frequency counts were used to categorize responses and calculate
willingness.
Findings
Salient beliefs included: Behavioral: Finding a cure/treatment for depression (29.3 %), Normative: Family would approve (46.3 %), and Church associates would disapprove (19.5 %). Control: Lacking information/explanations (34.1 %) as barriers, convenient locations (24.4 %)
as facilitators. Most mothers indicated a willingness to participate (90.2 %).
Conclusions
Interventions should target families, emphasize benefits, explain purposes and procedures,
and use community based participatory methods.
Keywords
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Article info
Publication history
Published online: July 17, 2022
Accepted:
July 3,
2022
Received in revised form:
June 3,
2022
Received:
August 30,
2020
Identification
Copyright
© 2022 Elsevier Inc. All rights reserved.
