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Beliefs and willingness towards participating in genetic testing for depression in low-income and racial/ethnic minority mothers at-risk

      Highlights

      • Diversity is missing in genetic studies aimed at preventing and treating psychiatric disorders.
      • Lack of engagement in research by diverse populations exacerbates mental health disparities.
      • Beliefs about participation in genetic research impact willingness to participate.
      • Marginalized sub-groups of mothers encounter barriers that intersect and impact participation.
      • Theoretically based inquiries can inform intervention strategies to enhance participation.

      Abstract

      Purpose

      To identify mothers' salient normative, behavioral and control beliefs and willingness towards participating in genetic salivary testing for depression.

      Design

      A qualitative, descriptive design was employed. 41 multi-ethnic mothers completed surveys that underwent directed content analysis according to The Theory of Planned Behavior. Percentages and frequency counts were used to categorize responses and calculate willingness.

      Findings

      Salient beliefs included: Behavioral: Finding a cure/treatment for depression (29.3 %), Normative: Family would approve (46.3 %), and Church associates would disapprove (19.5 %). Control: Lacking information/explanations (34.1 %) as barriers, convenient locations (24.4 %) as facilitators. Most mothers indicated a willingness to participate (90.2 %).

      Conclusions

      Interventions should target families, emphasize benefits, explain purposes and procedures, and use community based participatory methods.

      Keywords

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